The climb back up begins today - Victory Forums - Victory Motorcycle Forum
 
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post #1 of 8 (permalink) Old 04-10-2013, 06:54 PM Thread Starter
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Default The climb back up begins today

As no small number of you know by know, I've been battling Hodgkin's lymphoma for just over a year. Today I received my stem-cell reinfusion, and the road to recover beings now.

Just for clarification, I am an autologous stem-cell patient. They harvested my own bone marrow stem-cells about 2 months ago here at the Mayo Clinic in Phoenix. It was a fairly non-invasive process that only involved a catheter in my jugular called a Merhurker line and a few injections of a colony-stimulator called Neupogen, which forces my bone marrow to become hyper-active. They are then able to collect the stem cells from my peripheral blood through a process called apheresis, which is actually much like dialysis except they're able to collect the stem cells without much collateral damage to hemoglobin or platelet counts as you typically see in dialysis.

Post-collection, I went home to Idaho for 2 more cycles of inductive chemotherapy, and once it looked like it was time to jump, we got our butts back to Phoenix. I then had to undergo a whole week of high-dose chemo which made me as miserable as I have ever been during the whole process. I've only ever had mild nausea and loss of appetite from the last year of chemo, but this stuff just wiped me out.

But I've toughed out that hurdle. And now all I have to do is make it 2 more weeks without catching pneumonia or staph and they'll let me back out into the sunshine and fresh air.

I've talked about this process a time or two and everyone has been really supportive, so thank you all for that. You guys are like my lifeline to my bike, since it'll be a little bit before I can ride again.

You can count on me to be online from time to time, continuing to contribute, and I'll do my best to keep everyone updated. If you wanna chat or whatever, I'm always game.

Azdave, thanks for reaching out to me last week. It really meant a lot. Maybe when I get outta here we can catch up for a beer or something? (I dunno if they'll let me have beer right away, but you catch my drift)

You can call me Billy. Or Luci. But don't call me Shirley.

Mine:
2011 Cross Roads, crimson red
Lloyd'z ATS, IAV, VFC-III. Vic "High Performance" air filter. Ness Big Honkers. Funsies.

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2015 Vegas 8-Ball

My musings:www.billyrulez.wordpress.com
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post #2 of 8 (permalink) Old 04-10-2013, 07:31 PM
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Vaya con Dios and prayers for a fast and full recovery

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Some people go their whole life wondering if they made a difference, Marines don't have that problem.~ Ronald Reagan

2012 XCT, AFR+ Gen 4, Lloydz air filter. I don't equate noise with power.
I ride with the Force.
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post #3 of 8 (permalink) Old 04-10-2013, 08:53 PM
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Quote:
Originally Posted by Luciferiad View Post
As no small number of you know by know, I've been battling Hodgkin's lymphoma for just over a year.
Modern medicine is really something. The wife of my best riding buddy was diagnosed with an super aggressive breast cancer a little over a year ago. She went through about a year of treatment, but is now cancer free and looking no worse for the wear. She's now waiting patiently for me to put together our vacation plans.

Fight the good fight.




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post #4 of 8 (permalink) Old 04-11-2013, 12:03 AM
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I made it through Non-Hodgkin Lymphoma. Just over 10 years cancer free! It gets rough at times with the chemo, but it can be done. Prayers are with you for a full recovery to enjoy the ride!

2012 Cross Country Tour (Black)
Bought brand spanking new with 1 mile on odometer!
2012 Vegas 8-Ball (used, but only 782 miles on it!!)
2009 Hyosung GV250 for daily commute (Traded for the Vegas 8-Ball)
1981 Kawasaki 440LTD (First bike ever owned)
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post #5 of 8 (permalink) Old 04-11-2013, 06:03 AM
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Hang in there. I wanted to stop by but when you spoke of colds, pneumonia, etc i didn't want to bring in any germs. I am very close so if you or wife need anything PM me and we'll get it for you. Stay strong

Blame it on me
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2006 Jackpot sold
2006 Vrod Screaming Eagle (sold)
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post #6 of 8 (permalink) Old 04-11-2013, 06:59 AM
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I, too, waged war with HLC... it's been a battle and probably will never be as strong as I once was, but I am now strong enough to ride all day.

Just enjoy, and forgive yourself for being different than you were... god speed and keep two on the downside.

Handy

2013 Indian Vintage Chief FE... #7 of 25

2011 Victory Vision Tour Premium...
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post #7 of 8 (permalink) Old 04-11-2013, 07:09 AM
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I hope you have a speedy recovery.
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post #8 of 8 (permalink) Old 04-11-2013, 06:09 PM
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An 11 year cancer survivor here. Mine was a stage 4 neck cancer and involved my tonsils and my chest lymph nodes. I did surgery and radiation and so far have had no recurrence. Keep up the good fight. If you follow the best advice you can get, and never back down, it will improve your prognosis. For me, the local radiation treatment folks told me that I was the rare exception because I kept right on using the treatment no matter how bad I felt. Most people paused for a bit near the middle of it. The treatments are really designed to run the full treatment uninterrupted and that is how you must go if you want the best practical outcome, but it can be a real challenge to go there. Often it will feel like you are almost dying to follow those recommended treatment regimes but if you follow them, things will get better. All the best from me here in Central Illinois.

Present ride - 2013 Victory Vision, black, ATW at +3, Lloydz air filter and adjustable intake, PC5, 30,xxx miles
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